Managing clinical research data
The Ambient-BD study
27/02/2026
The BioRDM team
Data types in Ambient-BD
Data collection
Data management challenges
We expect…
- 200,000 raw data files
- 400 GB raw data
- 2 different APIs
…we need:
- Data download
- Structured storage
- Raw data cleaning
- Anonymisation
Data collection
Data downloaders
Command-line tools
- Connect to APIs
- Download and organise data
- Basic anonymisation (de-identification)
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Sleep Report
Data Sheet
- Overview of participant data
- Combines data from multiple sources
- Enabled by the data storage structure
.
├── 01-RedCap_quest_data
├── 02-Axivity_data
├── 03-EMA_data
├── 04-Somnofy_data
├── 05-RedCap_data_analysis
├── 06-Results_data_anonymised
├── 07-Protocols_and_instructions
├── 08-Sensors_and_supplies
├── 09-Participants_feedback
├── 10-Admin
├── 11-Manuscripts_and_presentations
├── 12-Participants
└── README.txtData management system
Beyond the data
Research projects that integrate data management…
- Let researchers focus on the research
- Facilitate interaction with companies
- Connect different skills
- Clinical expertise
- Product knowledge
- Technical expertise
- Software engineering
- Improve their data legacy
